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Europace 2003 5(4):381-389; doi:10.1016/S1099-5129(03)00078-3
© 2003 by European Society of Cardiology
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Implantable cardioverter defibrillator recipients: quality of life in recipients with and without ICD shock delivery

A prospective study

H. C. M. Kamphuis1,2, J. R. J. de Leeuw1, R. Derksen2,3, R. N. W. Hauer2,3 and J. A. M. Winnubst1

1Research Group Psychology of Health and Illness, University Medical Centre Utrecht The Netherlands; 2Heart Lung Institute, University Medical Centre Utrecht The Netherlands; 3Department of Cardiology, Heart Lung Centre Utrecht The Netherlands

AIMS: The experiences of patients who received shocks from their implantable cardioverter defibrillator (ICD) and how these events affect their overall adjustment are poorly understood. Our goal was to evaluate quality of life and psychological well-being, and the prevalence of, and changes in, depression and anxiety of patients who did or did not experience defibrillatory shocks in the first 12 months after ICD implantation. In total 167 patients were monitored after discharge. Four self-administered questionnaires were used. The first assessment took place before ICD implantation, the remaining three at 1, 6 and 12 months after discharge.

RESULTS: We classified patients into three shock groups and one no shock group. A small group of ICD recipients (26%) received ICD shock delivery, usually during the last 6 months of the study. Borderline significant differences were found within the groups over time regarding physical role limitations (P<0.051). Those who experienced shocks throughout the year (group 1) felt more limited in their daily activities due to physical or mental problems. All groups reported an improvement in their health (P<0.001). Overall quality of life did not change significantly after 6 months. Anxiety and depression did not change significantly over time. In total 22–66% of patients reported clinically significant depressive symptoms throughout the first year, and 31–83% clinically significant symptoms of anxiety. ICD recipients who had experienced a shock were significantly more anxious one year postdischarge than those who had not received a shock.

CONCLUSIONS: Overall quality of life and psychological well-being did not change in ICD recipients, irrespective of whether they experienced defibrillatory shocks. The high prevalence of depression and anxiety can be interpreted as a response to the perceived physical and mental problems regarding daily activities. Our data indicate that patients who have experienced an ICD shock do not adapt well to living with an ICD, they are more anxious than ICD recipients who received no shocks. However, the anticipation of having another shock after experiencing one is less stressful than that of the first shock. We conclude that the lasting psychological distress will not dissipate spontaneously or naturally and that psychosocial interventions may be warranted.

Key Words: ICDs, defibrillation shocks, quality of life

Correspondence: Helena C. M. Kamphuis, Stratenum, Research Group Psychology of Health and Illness, University Medical Centre Utrecht, P.O. Box 85060, 3508 AB Utrecht, The Netherlands. E-mail: h.c.m.kamphuis{at}med.uu.nl


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